December 31st, 2013
It’s been over 6 months since I posted on my blog. I have entered the stage of recovery where I am re-assembling my life, rebuilding my identity.
Although I have always been eager and willing to share my medical journey and what it has meant to me as a human being, this is intimate terrain, not something I care to share with the world of google.
Of course I still have medical stuff to deal with, but it’s small potatoes in the cancer world: scars, physical therapy, chronic lymphedema, scanxiety.
Meanwhile, friends and fellow cancer travelers contend with much greater challenges: ghastly long term side effects, unthinkable choices bequeathed by genetic testing results — even recurrences.
I am happy to keep my blog up as a resource for those who seek it here. My topic through this ordeal was fundamentally about the social and emotional realities of cancer and its treatment. Unfortunately, although the science has been advancing in important ways, the story of being a young mother with advanced cancer may not be changing so much any time soon. Same with my other story, being the sister of somebody who died too young from this awful disease.
I am grateful to have garnered so much love and support through this blog and other social media. It gave me a boost in my general faith in humanity that will stay with me the rest of my life.
No doubt cancer has changed me. Throughout my life, I have responded to adversity by becoming an educator and an advocate. It’s the only way I know to make my suffering worthwhile: by using the hard-won wisdom to lessen the suffering of others.
I will do this work primarily through the Breast Cancer Consortium, but I also will maintain my connection to organizations like Stupid Cancer, Little Pink Houses of Hope, Gilda’s Club, and Critical Mass that support young adult patients. There is still so much to be done. I am just putting my story to the side.
If you are coming to this blog looking for solace, please use the search tool for some key words: parenting, body image, friendships, identity loss, grief, daily life, gratitude. I have also included a timeline of my treatment at the end of this post if you are wanting to know what different things were like for me.
Wishing all of you peace, health and love.
If you want to hear my experiences of different phases of treatment my timeline was roughly as follows:
November 2009 – February 2010
March 2010 – April 2010
mastectomies and recovery
May 2010 – July 2010
July 2010 – presentre-entry
November 2009 – November 2010
October 2011 – May 2012
This entry was posted on Tuesday, December 31st, 2013 at 6:03 am and is filed under Survivorship. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.